top of page

Some very useful links to other sources of information

(All sites have some general information. They are listed in categories according to unique emphasis.)

 

General information about aging
 

The Amateur's Guide to Death and Dying

Please note the long list of very valuable posts under the tab: Select Category

http://theamateursguide.com

American Geriatric Society Foundation for Health in Aging

www.healthinaging.org

 

NIH Senior Health

http://nihseniorhealth.gov

 

American Geriatric Society Foundation for Health in Aging

www.healthinaging.org

 

NIH Senior Health

http://nihseniorhealth.gov

 

 
General information about advance care planning

 

The National Institute on Aging

http://www.nia.nih.gov/health/publication/end-life-helping-comfort-and-care/planning-end-life-care-decisions

 

Dying Matters (a British site)

http://www.dyingmatters.org

 

Family Caregiving Alliance

https://caregiver.org/end-life-decision-making

 

Center for Practical Bioethics

http://practicalbioethics.com

 

Mayo Clinic

http://www.mayoclinic.org/healthy-living/consumer-health/in-depth/living-wills/art-20046303?p=1

 

Information about MOELI, POLST (and MOLST, TPOPP, POST) forms

 

MOELI (Medical Orders for End of Life Intervention)

A significant improvement upon the POLST paradigm extending service to healthy people 80 and older.

https://mail.google.com/mail/u/0/#search/MOELI/16100886debe639d

POLST organization

http://www.polst.org/advance-care-planning/faq

 

States that honor POLST programs have their own websites, e.g. 

http://www.wsma.org/POLST

 

End-of-lfe and Palliative Care Education Resource Center

www.eperc.mcw.edu

 

 

Importance of communicating preferences to doctors
 

The Letter Project as one form of Personal Statement and back-up for Step 5

https://www.youtube.com/watch?v=vApg3qAn55s&feature=youtu.be

 

 
Information about organ donation

http://www.unos.org/docs/Update_SepOct10_InAdvance.pdf

 

 

Information about how to discuss end-of-life care

 

Honoring Choices Pacific Northwest

An Initiative of the Washington State Medical Association and the Washington State Hospital Association

http://www.honoringchoicespnw.org

 

The Conversation Project

http://theconversationproject.org

 

Coalition for Compassionate Care of California

http://coalitionccc.org/wp-content/uploads/2014/10/ACP_Conversation-Guide.pdf

 

 
Resources for in home caregivers
 
US Administration on Aging. National Family Caregiver Support Program

http://www.doa.gov/prof/doaprog/caregivers/carefam/carefam.asp

 

Caregiver Resource Directory

http://www.stoppain.org/caregivers/resource_form.html

 

Caregivers USA

http://www.caregivers-usa.org

 

The American Gerentological Society Online Caregiver Guide

http://www.healthingagig.org/public_education/eldercare/

 

Center for Caregiver Support

http://www.caregiving101.org

ALSO

http://www.apa.org/pi/about/publications/caregivers/consumers/index.aspx

Resources for storing living wills electronically

 

The U.S. Living Will Registry

http://www.uslivingwillregistry.com/aboutus.shtm

 

American Bar Association

http://www.americanbar.org/news/abanews/aba-news-archives/2014/04/new_aba_mobile_apph.html

 

ADVault

https://mydirectives.com/en/about/company

 

 

Information about dealing with death

 

Part One: Introduction to Radical Acceptance

http://www.dbtselfhelp.com/html/radical_acceptance_part_1.html

 
Information about palliative care
 
https://drive.google.com/file/d/0BylFEWCSwGsUbkk2X0FhaUFEckU/edit
 
Information about hastening death

 

Compassion and Choices

http://www.compassionandchoices.org/what-we-do/advance-planning

 

Caring Connections

http://www.caringinfo.org/i4a/pages/index.cfm?pageid=3289

 

Final Exit Network

http://www.finalexitnetwork.org

 

Worksheet for recording drug information

http://www.worstpills.org/public/drugsheet.pdf

 

 

Information about how to manage progressive,  debilitating illnesses

 

CareJourney site offers excellent advice concerning all aspects of managing illness, including medical, social, financial, and spiritual aspects of care

http://www.carejourney.org

 

Family Caregiver Alliance

www.caregiver.org

 

Alzheimer's Association

http://www.alz.org/care/overview.asp

 

Home Hospice and Palliative Care

http://helpguide.org/articles/caregiving/hospice-and-palliative-care.htm

 

Information about palliative care

http://www.mypcnow.org/#!fast-facts-121-180/csd6

 

 

Information about managing the cost of care

 

Care Journey Manage Finances Archives

http://www.carejourney.org/category/manage-finances

 

 

Information about understanding hospital bills

 

The Medical Bill Mystery

http://nyti.ms/1OPkXcW

Understanding your medical bill

https://www.khanacademy.org/partner-content/brookings-institution/introduction%20to%20healthcare/v/what-goes-into-a-medical-bill?

Information about deprescribing (reducing the number of) medications

http://www.medscape.com/viewarticle/880516?src=wnl_edit_tpal&uac=118419BY

 

https://www.ngna.org/_resources/documentation/chapter/carolina_mountain/STARTandSTOPP.pdf

 

https://www.dcri.org/beers-criteria-medication-list

 

http://medstopper.com/

 

 

bottom of page